The Passenger’s Log Stardate 29 August 2021
This has been a big week or two here on-board the GENESIS two-seven. First, a praise with a shadow, the OXYGEN is here! Even as I write this, fresh oxygen generated through a machine tucked neatly behind my chair is my new medical marvel, O2 delivered through a plastic hose! I and the crew are very thankful this finally came through. For now it is just for nighttime use for helping me keep my O2 levels up while I sleep. Extended use of it will follow when I have more difficulties moving about during the day. I call my new friend, Gerald. This is Gerald.
Of course, he sits in the dark, back in a corner. I added another photo to sh9w what Gerald looks like when you shine a little light his way. Gerald prefers to remain in the dark, however.
I wrote that this was a blessing with a shadow. I don’t know how others react in my situation but I must tell you, the first night I slipped the nasal canula around my neck, even though I knew this was a benefit to me there was a strange feeling about it. Yes, this will help ease my struggle to breath at night and will help me sleep. Within the shadow is the truth that there is no going back. Minus a lung transplant or a divine miracle, once I start this oxygen therapy my reliance on it will only grow stronger. But such is life. I remain thankful for the O2. I have a least one granddaughter who struggles seeing Papaw wear the O2. It reminds her that Papaw may not live as long as she would like. I took some time with her to reassure her that the O2 is just a tool to help me and that God will decide how long I will be aboard this ship.
I’ve titled this post, MISSION 64-1 and here is why. Part of the activity of the week included the celebration of my birthday! On the 27th of August I turned 64. Although I was diagnosed in February 2021 with IPF, the doctors said it is slow to appear so I am guessing that by February, I had probably had IPF five months already which would be August of 2020. That means, this year on my birthday, I can celebrate one year of surviving this disease. That also means that on my 84th birthday I can celebrate it as 84-20! Each year that another number advances is a victory!
Also this past week, on the 25th and 26th, the GENESIS two-seven was hovering over Kelley’s Island in Lake Erie. Celebrating our 42nd wedding anniversary, Karin and I drove to Marblehead, Ohio where we boarded a ferry to the island. Arriving at a B&B, the Inn on Kelley’s Island, we hustled ourselves down to Dockers to eat dinner just before the kitchen closed but also in time to enjoy the view of a beautiful sunset. The next day we enjoyed just traveling the island and taking in the sites.
What’s next? I’m being scheduled now for a new set of breathing tests, x-rays and a new CAT scan to see how much, if any the IPF has advanced. Once those tests are done it is time for another visit to Dr. N. And so it goes.
Verse 16 from Psalm 139 goes like this: “Your eyes saw my substance, being yet unformed. And in Your book they all were written, The days fashioned for me,
When as yet there were none of them.”
Every day of my life was written down by God before there was even one. Knowing that God knows and cares about every day of my life, even before they happen, is more comforting than this Passenger can describe. May God bless all my crew and shipmates and bless each of you in the days ahead!